Is a European umbrella network of Sickle Cell Disease patient organisations advocating with One United Voice.
The organisation was founded in October 2019, and further officially registered its headquarters in Ireland, with its international administrative management under its founding member organisation Sickle Cell and Thalassaemia Ireland, a national patient and parent umbrella charity -CHY20908 organisation founded in 2011, representing all Sickle Cell support groups in the Ireland and Northern Ireland.
The European Sickle Cell Federation currently has a membership of 22 member organisations representing countries like Sweden, Switzerland, France, Belgium, Ireland, United Kingdom, Germany, Austria, Portugal, Spain, Netherlands, and Italy.
Vision: One United Voice
Mission:
The mission is to engage in a united, unique and strong voice for Sickle Cell patients, family members, carers, and all national patient organisations of people with Sickle Cell Disease and related conditions in Europe by promoting, enabling, enhancing and fostering of their ability to improve the quality of health, life, and services for all patients.
